April 2025 Newsletter

PHAN April 2025 Newsletter: Join us on the <span class="glossary-tooltip glossary-term-1100" tabindex="0"><span class="glossary-link"><a href="https://publichealthactionnetwork.org/glossary/pandemic/" class="glossary-only-link">Pandemic</a></span><span class="hidden glossary-tooltip-content clearfix"><span class="glossary-tooltip-text">A global outbreak of a disease.</span></span></span> Pals meeting again this Saturday
 
 
Greetings, public health PHANs! We are busy as always here and want to share some of the work we’re doing, as well as highlighting other great work and writing from the COVID-conscious community. 
  • We’ve created a new Long COVID section on our website with several explainers on the disease and a list of Long COVID clinics, plus our new collection of “Living with Long COVID Stories”, including a new story from Julia Doubleday about Ellie, who used to be a traveler but is now mostly home-bound with Long COVID.
  • This Saturday April 26th, we’ll again host a breakout room at the Pandemic Pals online meeting on Zoom, on at 5pm PT/8pm ET. Check their Google Doc on Saturday for the Zoom link.
  • We’re continuing to make progress on SAFER, our global resources directory for COVID-conscious and clean air folks.
  • We recently took part in one of the “Rising Hope” COVID-conscious community meetings on Zoom, and we’ll review their group and some other online community resources.
  • And we’ll include some recent news articles and upcoming events.
 
If you know of events that should go in our next newsletter, please email them to us at media@phan.community. 
 
On to the newsletter!
 
 
 
COME EXPLORE The new 
long covid section of our website!
We’re excited to announce a new section on Long COVID on our website with several new pages. We now have explainers on nearly every aspect of the disease: 
 
We’ve also started a series of “Living with Long COVID Stories”, with a new story from Julia Doubleday about Ellie who used to be a traveler but is now mostly home-bound with Long COVID and feels like she’s practically disappeared from “normal” life. This story joins the essays from Steph Fowler and Julia Doubleday about their own experiences with Long COVID
 
We’ve also created a list of over 400 Long COVID clinics throughout the United States, and we plan to continually update this list and expand this list to include other countries. 
 
In addition, on our website we’re providing some external links to listings of clinical trials regarding Long COVID, the Mayo Clinic forum for post-COVID recovery and the COVID-19 Support Group, the Long COVID Alliance, and the Patient Led Research Collaborative
 
We hope these will be useful resources to you. If you find them useful, please share them with friends!
 
 
 
Phan TO host a breakout room at the pandemic pals zoom meeting this Saturday
We are delighted to announce that this Saturday, April 26th, we’ll again be joining the Pandemic Collaborative’s regular weekly meeting on Zoom at 5pm PDT/8pm EDT. We’ll have our own breakout room where PHAN staff will introduce our organization, talk about our mission and our team, talk about some of our upcoming projects, and provide a demonstration of the SAFER global resources directory. 
 
You can call into the Zoom meeting by going to their Google Doc and using the Zoom link that they’ll put in the document sometime today or Saturday. We’re excited to be able to talk with folks directly in these meetings!
 
 
 
update on our “safer” resources directory
We’re making great progress on one of our first projects: SAFER, a global resources directory for folks who are COVID-conscious, dealing with Long COVID, or interested in clean air technology and advocacy. 
 
The directory will include COVID/Long-COVID/clean-air advocacy and support organizations, COVID-conscious businesses and healthcare providers, mask blocs, clean air clubs, Long COVID providers, C02 monitoring, and other related businesses and groups around the world. We now have over 5000 entries that are continuing to be vetted, and that’s just to start! Anyone will be able to access the directory by browsing categories, searching by name or area, or finding entries geographically on a map.
 
This data will all be free with no account or login required, and we’ll be happy to share our collected resources data back with anyone. We’re so excited about this project and can’t wait to make it available to everyone! More details coming soon!
 
 
 
online covid communities
We’re hearing about more online COVID-aware communities which can be great sources of friendship and information, as well as great ways to overcome the sense of isolation that many of us are feeling. Check these Zoom groups and online discussion forums, and let us know if you hear of other groups that should be included here (email us at info@publichealthactionnetwork.org):
  • Pandemic Pals weekly Zoom calls: every Saturday, the Pandemic Collaborative hosts this call that is inclusive and welcoming to all. They offer several breakout rooms based on age-groups, life situations, special interests, or just for general hanging out.
  • Rising Hope calls on Zoom: a community of COVID-conscious folks that meet Monday evenings, Saturday afternoons, and Sunday mornings for church services.
  • COVID19 group on Reddit: “This subreddit seeks to facilitate scientific discussion of this potential global public health threat.” (607K members)
  • COVID Long Haulers group on Reddit: “A community for individuals suffering from the effects of COVID-19 longer than the estimated 4 weeks, also known as PACS, PASC, and Long Covid.”  (68K members)
  • Zero Covid Community on Reddit: “a place where people who are passionate about reducing the transmission of SARS-CoV-2 / Covid-19 and protecting those who are at high risk can come together with a shared vision for the future.” (28K members)
  • COVID Meetups: from World Health Network
  • WHN’s Discord Community: from World Health Network
  • Covid Safe Hotties: an online community and archive to help spread timely, science-based information about COVID-19, with discussion spaces for discussion, information, and resources.
 
 
 
We’re seeking volunteers!
If you’d like to help make a world that supports folks being COVID-conscious, where anyone can find the Long COVID healthcare they need, and where everyone has access to clean indoor air, we want you! We’re ramping up quickly and would love to have you on our team. We’re looking for volunteers in the following areas: 
 
Project Management
Volunteer Coordinaters
 
SAFER: people who can call and vet businesses and organizations; people who can organize spreadsheets, look up URLs and find addresses, locations, download images, etc.; and website/Wordpress developers
 
CLEAN/CLEAR: fullstack developers, AI (Deepseek, LLM trainers, etc), researchers, NLP experts, psychiatrists
 
AIRWISE: Game Developers (Unity preferred) who understand physics engines
 
Communications: social media, graphic designers, writers, storytellers, fundraisers, photographers, videographers, news curators
 
If you match any of those needs, fill out our contact form on our website and one of us will get back to you as soon as we can. If you have other skills or experience that you think might help our work, go ahead and fill out our form, and we’ll find a way for you to help! 
Thank you to everyone who’s considering volunteering with us – we really appreciate it!
 
 
 
UPcoming events of interest
May 16th, 2025: Clinician’s Roundtable: Dr. Malcolm & Dr. Haughton discuss ME & Long Covid. Stuart Malcolm, MD, medical director of RTHM, and John Haughton, MD, medical director of Renegade Research, will have a discussion about ME and Long Covid and will go over challenges, tests, and treatment pathways. Event will include a live Q&A session. Hosted by Renegade Research
 
May 29th, 2025: The Stanford Center for Continuing Medical Education presents, “Unraveling Long COVID Care: Clinical Advances and Future Directions”, available on Zoom. 
 
 
 
And now a word from The vertlartniC
The Vertlartic: What Have We Learnt In The Five Years Since Nothing Happened?
- showing a meeting room with several peopl
 
 
 
LATEST NEws and articles
April 24th, 2025, CIDRAP: Measles may be endemic in 25 years if vaccine uptake remains low. “Without a 5% higher measles, mumps, and rubella (MMR) vaccination rate, measles may revert to endemicity in the United States within 25 years, while a 10% decline in vaccination could lead to 11.1 million cases of the highly contagious illness in that timeframe, according to predictions from a simulation model published today in JAMA.” 
 
April 24th, 2025, California State University-Sacramento: Sac State researchers study Long COVID’s impact on hearing, ‘brain fog’. “A pair of Sac State professors are studying the link between such symptoms and COVID infection and providing therapy that typically is used to treat patients with brain injuries and auditory processing problems. Though the study is in its early stages, the approach seems to be working for some participants…D’Angelo and Venkitakrishnan [the two professors involved] said the study is one of only a few that have explored hearing issues related to COVID. It also is among a handful of studies that have included treatment.”
 
April 9th, 2025, CIDRAP: Studies: Nearly 1 in 7 U.S. working age adults report Long COVID, with heaviest burden on the poor. “Yesterday in Communications Medicine, Daniel Kim, MD, DrPH, of Northeastern University, analyzed data from the US Census Bureau’s Household Pulse Survey from September and November 2022 and August to October 2023 on more than 375,000 US adults, including nearly 50,000 with self-reported long COVID…About 35 million adults and 30 million working-age adults, or roughly 1 in 7, said they had experienced long COVID by late 2022 and 2023. Lost wages due to long COVID among working-age survey respondents were estimated at $211 billion in 2022 and $218 billion in 2023.”
 
 
 
how you can support us
If you’re able to donate, we gladly accept donations of any size! Your donation goes towards making it possible for us to create tools that will benefit folks around the world. 
 
Another way to help support us is to follow us on social media and share our posts, on Bluesky, Twitter, Instagram, and Facebook. When you follow us, like our posts, replay to our posts, and share our posts, it all adds up to help increase our visibility. Thank you for following us and sharing our posts!
 
 
 
Thank you for being a public health advocate, 
From 
The entire PHAN team
 

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