March 2025 Newsletter

PHAN March 2025 Newsletter: Join us on the <span class="glossary-tooltip glossary-term-1100" tabindex="0"><span class="glossary-link"><a href="https://publichealthactionnetwork.org/glossary/pandemic/" class="glossary-only-link">Pandemic</a></span><span class="hidden glossary-tooltip-content clearfix"><span class="glossary-tooltip-text">A global outbreak of a disease.</span></span></span> Pals meeting on Saturday
 
 
Greetings, public health PHANs! We are super busy here and want to share some of the work we’re doing and highlight other great work and writing from the COVID-conscious community: progress on SAFER our global resources directory for COVID-conscious and clean air folks; a Long COVID spotlight on therapist and writer Steph Fowler in Chicago; a blog post from a volunteer on her thankfully short-lived experience with Long COVID; announcement of us joining up with the Pandemic Collaborative to host a breakout room during their Saturday Zoom meeting; recent news articles; a list of upcoming online and in-person events; and a call for volunteers for the projects we’re working on.
 
If you know of events that should go in our next newsletter, please email them to us at media@phan.community. 
 
We’re also looking for photos and videos to re-post on our social media. Send us photos or videos of folks having fun and living their best life while being COVID-conscious, and we’ll select photos to re-post on our social media channels then credit and/or tag you. You can email those to us at media@phan.community
 
On to the newsletter!
 
 
 
five years of the covid pandemic
On March 15th, people around the world marked Long COVID awareness day, and more generally the fifth anniversary of the pandemic being announced back in March 2020. This is a bittersweet anniversary, as while some progress has been made in understanding what COVID does and how Long COVID develops, there’s still so much we don’t know, and we’re at a time when funding into Long COVID research is being slashed and residents of countries and U.S. states are having to fight back mask bans. We’re going to do our best to foster hope and support for those who are COVID-conscious, affected by Long COVID, or interested in COVID prevention and clean air efforts.
 
 
 
Phan is joining pandemic pals this Saturday!
We are delighted to announce that this Saturday, March 29th, we’ll be joining the Pandemic Collaborative’s regular weekly meeting on Zoom at 5pm PDT/8pm EDT. We’ll have our own breakout room where PHAN staff will introduce our organization and talk about some of our upcoming projects, especially the SAFER global resources directory (see our update below). You can call into the Zoom meeting by going to their Google Doc and using the Zoom link that they’ll put inside the document sometime today. We’re excited to be able to talk with folks directly, and if there seems to be interest we’ll work on making this a regular event.
 
 
 
update on our “safer” resources directory
We’re making great progress on one of our first projects: SAFER, a global resources directory for folks who are COVID-conscious, dealing with Long COVID, or interested in clean air technology and advocacy. The directory will include COVID/Long-COVID/clean-air advocacy and support organizations, COVID-conscious businesses and healthcare providers, mask blocs, clean air clubs, Long COVID providers, C02 monitoring, and other related businesses and groups around the world. We now have over 5000 entries that are continuing to be vetted (and that’s just to start!) that anyone will be able to access by browsing a categories directory, searching by name or area, or finding entries geographically on a map.
 
This data will all be free with no account or login required, and we’ll be happy to share our collected resources data back with anyone. We’re so excited about this project and can’t wait to make it available to everyone! More details coming soon!
 
 
 
LONG COVID SPOTLIGHT:
therapist and writer STEPH FOWLER
Steph Fowler is a mental health professional in Chicago who specializes in working with the chronically ill and disabled communities, neuro-divergent folks, and those with COVID and Long COVID. They became affected with COVID in early 2020 then again in 2023, and developed Long COVID. They graciously let us re-publish their recent essay, “All That Has Been Taken and Changed”, about their experience with getting COVID, then developing Long COVID and the drastic ways it’s affected their life. We encourage you to share their story with others, as many people with Long COVID may not recognize it as such.
 
You can read more of Steph’s writing at their Substack, including their terrific article on “Why are people wearing masks in 2025?”. You can learn more about them and their mental health practice on their website.
 
 
 
Blog post: a volunteer’s experience of 
long covid
Our volunteer Kaylie shares her story of becoming affected with COVID which led to a year-long experience of being utterly fatigued and barely able to take care of herself, but doctors were unable to provide any treatment. Luckily she appears to currently have recovered from her Long COVID but the experience affected her terribly. Her story attests to the fact that Long COVID is likely affecting many more people than is being publicly reported.
 
 
 
UPcoming events of interest
March 29th, 2025: We’re joining with the Pandemic Collaborative’s weekly “Pandemic Pals” Zoom meeting for COVID-conscious folks! See the item above for more information.
 
April 9th, 2025: Writer and reporter Violet Blue presents, “No Idle Threat–On dangerous ground investigating Aotearoa New Zealand’s COVID-19 response”, in person in Wellington, NZ, and available on Zoom.
 
May 29th, 2025: The Stanford Center for Continuing Medical Education presents, “Unraveling Long COVID Care: Clinical Advances and Future Directions”, available on Zoom. 
 
 
 
We’re seeking volunteers!
If you’d like to help make a world that’s supportive of folks being COVID-conscious, a world where anyone can find the Long COVID healthcare they need, and a world where everyone has access to clean indoor air, we want you! We’re ramping up quickly and would love to have you on our team. We’re looking for folks in the following areas: 
 
SAFER: people who can call and vet businesses and organizations; people who can organize spreadsheets, look up URLs and find addresses, locations, download images, etc.; and website/Wordpress developers
 
CLEAN/CLEAR: fullstack developers, AI (Deepseek, LLM trainers, etc), researchers, NLP experts, psychiatrists
 
AIRWISE: Game Developers (Unity preferred) who understand physics engines
 
Communications: social media, graphic designers, writers, storytellers, fundraisers
 
If you match any of those needs, fill out our contact form on our website and one of us will get back to you as soon as we can. If you have other skills or experience that you think might help our work, go ahead and fill out our form, and we’ll find a way for you to help! 
Thank you to everyone who’s considering volunteering with us – we really appreciate it!
 
 
 
Some fun from The vertlartnic…
The Vertlartic: What Have We Learnt In The Five Years Since Nothing Happened?
- showing a meeting room with several peopl
 
 
 
LATEST NEws and articles
March 27th, 2025: RECOVER grants for Long COVID pathobiology research are among those cut under new NIH directive. The Sick Times is covering this as a developing  story, click the link for the latest details.
 
March 25, 2025: The CDC is pulling $11 billion dollars in funding to states for COVID testing, vaccinations, community health workers, and initiatives meant to address healthcare inequities. HHS Director of Communications Andrew Nixon falsely stated that “the COVID-19 pandemic is over”, and that the COVID crisis is “a non-existent pandemic that Americans moved on from years ago”.
 
March 26, 2025: HHS’s Long COVID office is closing. What will this mean for future research and treatment? Scientific American assesses the likely impact and spoke with PHAN board member Dr. Ziyad Al-Aly about the impacts. ” ‘People have been scarred by this pandemic in the form of long COVID, and their disease is real and requires help,’ Al-Aly says. ‘The intent of the office was to really catalyze progress and realize efficiencies. Undoing it risks undoing a lot of the work, delaying a lot of progress, and [it] really is a disservice today to the more than 20 million Americans who are suffering from long COVID.’ ”
 
March 24th, 2025: KQED Radio’s Alexis Madrigal interviews Ed Yong on the COVID pandemic’s legacy on science research and reporting. Yong was one of the first reporters to recognize and cover the growing Long COVID crisis.
 
 
 
how you can support us
If you’re able to donate, we gladly accept donations of any size! Your donation goes towards making it possible for us to create tools that will benefit folks around the world. 
 
Another way to help support us is to follow us on social media and share our posts, on Bluesky, Twitter, Instagram, and Facebook. When you follow us, like our posts, replay to our posts, and share our posts, it all adds up to help increase our visibility. Thank you for following us and sharing our posts!
 
 
 
Thank you for being a public health advocate, 
From 
The entire PHAN team
 

The latest on Instagram

 
 
Facebook
Instagram
Twitter
Youtube
8 The Green, STE A
Dover, DE 19901, United States